It’s been a very long time since I’ve posted and a lot has happened, I don’t think I should put it all in one post, so I’m going to separate all of them.
The most important is about my epilepsy. Two years ago, I met a new neurologist. A very caring one. On our first visit, I walked in wearing my SF 49’ers sweatshirt and my husband had is SF Giants t-shirt on. The first thing my doctor said was that we were going to get along really well, as he is also a big San Fransisco fan. And sure enough, we do. We talked about what I have gone through during all the years I’ve been having seizures, and I could tell that he was upset, that I couldn’t be helped. The last thing he promised was that if he couldn’t do anything for me with medications and treatment, he would send me up to Stanford in Palo Alto, where there is a epilepsy center. I literally cried on the way out of his office as I was overwhelmed.
Throughout the month, we tried different medications and different doses. I could see that every time I stepped into his office to tell him that the seizures were continuing, that he was very disappointed.
The last time I saw him just a couple of weeks ago, he was very sad to admit that he didn’t know what else to do. He was putting the request in to send me up to Stanford. Again, I cried on the way out of his office.
I got the call last week to make an appointment. This first visit will be just a consolation visit. They will basically find out more about me, more about the kinds of seizures I’ve been having so that they can determine just what I need. Once that is over, we will make a plan to have me up there for treatment.
Who knows what that treatment will entail and how long it will take. Could be a day, could be a couple of days, could be a week or more. We just won’t know until it is determined just what I need. When I got off the phone with her, I was so overwhelmed. The thought of it all really sunk in.
There’s part of me who is very excited and another part who is a bit nervous, not knowing just what I am stepping into. But from what I hear from others, Stanford has the best facility around. It would be wonderful to finally be seizure free and be able to enjoy the things of life I’ve had to let go of.