David is dearly remembered today on what would have been his 50th birthday. It’s been five years since I’ve had the chance to call him to wish him a great day. The only thing I can do now is go sit at the beach and be with his spirit.
I have just taken my 5th MRI, and will be put in again in May. I must say that the more I go up there, the more tired I get. The travel time from Monterey to Stanford can be a two hour drive, depending on traffic. This last one, we got up there early, earlier than I had expected, so I sat in the waiting room for a considerable amount of time. Luckily, I had thought enough to take my quilting project up with me, just in case.
Of course, all of the MRI’s I’ve taken are different. The last one I had taken in February was a functional MRI, in which I needed to remain awake and identify items on a screen and just what they do and what their functions are in our lives. I almost fell asleep during the ‘breaks’ but they wouldn’t allow it.
This latest one was what they called a PET MRI. During this one, they wanted me to relax as much as I could. They even allowed me to sleep, stating that it would be great if I could. The first half hour that I was there, they put me in a dark room and told me to relax. I was so tired from the drive, that I closed my eyes and was almost asleep when I was interrupted by the gentleman who was assigned to take care of me. He came in with an injection of some kind of radiation, then left me for another half hour, hoping I’d go to sleep again. I was close, but not quite.
He then took me into the room that included the machine and computers, where I was introduced to another technician. When they were laying me on the table, I was so groggy, I had a hard time getting myself settled without help. I just about fell asleep before they got me completely into the machine. I was in there for about an hour, but being that I was sleeping, it didn’t seem like it had been that long when they woke me up.
The ride home was a bit longer than the one up to Stanford. I tried to sleep through it, but for some reason I couldn’t. I just closed my eyes, but there were too many thoughts going through my mind. Mainly what are they going to find, and just how many more tests are they going to put me through before deciding just what they are going to do and where.
I must say that this test exhausted me. Not that the others didn’t but it took me about three days to fully recover, and on the fourth day, I had a seizure at 6:00 in the morning, and when I an writing this 12 hours later, I am still feeling the side affects. I am pretty sure that this is due to lack of sleep the last couple of nights.
I am hoping that I will be seizure free by the end of the year, with either a computer chip implant or laser surgery. I’m tired.
A business trip to San Francisco presented me with another classic incidental wildlife spotting opportunity. I had read about the legendary Pier 39 and the California Sea lions that spend their days sunbathing there, so I tagged a weekend on to my trip, and after a great day of photographing hummingbirds in Golden Gate Park, I […]
On Thursday, January 25th, I went back to Stanford for another test.
(I thought I had posted this earlier, but it came up as a draft)
On October 16, I checked into Stanford Hospital to be hooked up to an EEG machine for longer than the few minutes at my local care facility. In the past, my tests didn’t show anything as I did not have any seizures during the time when I was hooked up.
When we arrived (my husband was driving) the front of the hospital was super busy with what looked like valet parking, something we didn’t need for just a drop off. I got out of the car and he drove away. I entered the hospital and found my way around the hustle bustle, as I had directions to where I was going. In the neurological section, I was greeted by a young man who knew who I was, as I had called before leaving Monterey and told him that I was on my way.
Although I was set up in a room with another woman, we had to wait until one was available. I had no problem with that. The only reason I wanted a separate room was so that my mother could stay with me. Luckily, she had in-laws she could stay with in the meantime.
Shortly after I arrived, I was set up in bed with 24 electrode pasted to my head. The doctors came to visit me, and my mother arrived, as she had flown from Maui to be with me throughout. She and I have been through so much with my epilepsy and this was just another step for us. We both wanted her to be there. That night, they took me off one of my meds to try and encourage a seizure to hit. The gave me a button to push if I should ever feel a seizure coming on. They had a 24 hour/day monitor on me so they could keep an eye on me in case I needed some extra help.
It’s been a very long time since I’ve posted and a lot has happened, I don’t think I should put it all in one post, so I’m going to separate all of them.
The most important is about my epilepsy. Two years ago, I met a new neurologist. A very caring one. On our first visit, I walked in wearing my SF 49’ers sweatshirt and my husband had is SF Giants t-shirt on. The first thing my doctor said was that we were going to get along really well, as he is also a big San Fransisco fan. And sure enough, we do. We talked about what I have gone through during all the years I’ve been having seizures, and I could tell that he was upset, that I couldn’t be helped. The last thing he promised was that if he couldn’t do anything for me with medications and treatment, he would send me up to Stanford in Palo Alto, where there is a epilepsy center. I literally cried on the way out of his office as I was overwhelmed.
Throughout the month, we tried different medications and different doses. I could see that every time I stepped into his office to tell him that the seizures were continuing, that he was very disappointed.
The last time I saw him just a couple of weeks ago, he was very sad to admit that he didn’t know what else to do. He was putting the request in to send me up to Stanford. Again, I cried on the way out of his office.
I got the call last week to make an appointment. This first visit will be just a consolation visit. They will basically find out more about me, more about the kinds of seizures I’ve been having so that they can determine just what I need. Once that is over, we will make a plan to have me up there for treatment.
Who knows what that treatment will entail and how long it will take. Could be a day, could be a couple of days, could be a week or more. We just won’t know until it is determined just what I need. When I got off the phone with her, I was so overwhelmed. The thought of it all really sunk in.
There’s part of me who is very excited and another part who is a bit nervous, not knowing just what I am stepping into. But from what I hear from others, Stanford has the best facility around. It would be wonderful to finally be seizure free and be able to enjoy the things of life I’ve had to let go of.
Black Friday. Ive always wondered just where that term comes from. Do people black out when they get to the stores and realize just how low the prices are? Do the knock each other out trying to get to that last sale item on the shelf? Does their day turn black when they realize they’ve spent all their money and don’t have enough money to buy that last item they’d waited so long in line to pay for?
It’s always amazed me that we all sit around the table the evening before, thankful for our families, our friends, and what we already have and then the very next day we have this need to be greedy and fight to grab everything off the store shelve that we can. I guess that’s something I’ll never understand. I don’t even open my own shop on Black Friday.
As always, I’ll just sit here at home, drink my tea, and nibble on leftovers as I work on my writing and maybe my quilting. I know it will make my cats happy to have me here.