A business trip to San Francisco presented me with another classic incidental wildlife spotting opportunity. I had read about the legendary Pier 39 and the California Sea lions that spend their days sunbathing there, so I tagged a weekend on to my trip, and after a great day of photographing hummingbirds in Golden Gate Park, I […]
On Thursday, January 25th, I went back to Stanford for another test.
(I thought I had posted this earlier, but it came up as a draft)
On October 16, I checked into Stanford Hospital to be hooked up to an EEG machine for longer than the few minutes at my local care facility. In the past, my tests didn’t show anything as I did not have any seizures during the time when I was hooked up.
When we arrived (my husband was driving) the front of the hospital was super busy with what looked like valet parking, something we didn’t need for just a drop off. I got out of the car and he drove away. I entered the hospital and found my way around the hustle bustle, as I had directions to where I was going. In the neurological section, I was greeted by a young man who knew who I was, as I had called before leaving Monterey and told him that I was on my way.
Although I was set up in a room with another woman, we had to wait until one was available. I had no problem with that. The only reason I wanted a separate room was so that my mother could stay with me. Luckily, she had in-laws she could stay with in the meantime.
Shortly after I arrived, I was set up in bed with 24 electrode pasted to my head. The doctors came to visit me, and my mother arrived, as she had flown from Maui to be with me throughout. She and I have been through so much with my epilepsy and this was just another step for us. We both wanted her to be there. That night, they took me off one of my meds to try and encourage a seizure to hit. The gave me a button to push if I should ever feel a seizure coming on. They had a 24 hour/day monitor on me so they could keep an eye on me in case I needed some extra help.
It’s been a very long time since I’ve posted and a lot has happened, I don’t think I should put it all in one post, so I’m going to separate all of them.
The most important is about my epilepsy. Two years ago, I met a new neurologist. A very caring one. On our first visit, I walked in wearing my SF 49’ers sweatshirt and my husband had is SF Giants t-shirt on. The first thing my doctor said was that we were going to get along really well, as he is also a big San Fransisco fan. And sure enough, we do. We talked about what I have gone through during all the years I’ve been having seizures, and I could tell that he was upset, that I couldn’t be helped. The last thing he promised was that if he couldn’t do anything for me with medications and treatment, he would send me up to Stanford in Palo Alto, where there is a epilepsy center. I literally cried on the way out of his office as I was overwhelmed.
Throughout the month, we tried different medications and different doses. I could see that every time I stepped into his office to tell him that the seizures were continuing, that he was very disappointed.
The last time I saw him just a couple of weeks ago, he was very sad to admit that he didn’t know what else to do. He was putting the request in to send me up to Stanford. Again, I cried on the way out of his office.
I got the call last week to make an appointment. This first visit will be just a consolation visit. They will basically find out more about me, more about the kinds of seizures I’ve been having so that they can determine just what I need. Once that is over, we will make a plan to have me up there for treatment.
Who knows what that treatment will entail and how long it will take. Could be a day, could be a couple of days, could be a week or more. We just won’t know until it is determined just what I need. When I got off the phone with her, I was so overwhelmed. The thought of it all really sunk in.
There’s part of me who is very excited and another part who is a bit nervous, not knowing just what I am stepping into. But from what I hear from others, Stanford has the best facility around. It would be wonderful to finally be seizure free and be able to enjoy the things of life I’ve had to let go of.
Black Friday. Ive always wondered just where that term comes from. Do people black out when they get to the stores and realize just how low the prices are? Do the knock each other out trying to get to that last sale item on the shelf? Does their day turn black when they realize they’ve spent all their money and don’t have enough money to buy that last item they’d waited so long in line to pay for?
It’s always amazed me that we all sit around the table the evening before, thankful for our families, our friends, and what we already have and then the very next day we have this need to be greedy and fight to grab everything off the store shelve that we can. I guess that’s something I’ll never understand. I don’t even open my own shop on Black Friday.
As always, I’ll just sit here at home, drink my tea, and nibble on leftovers as I work on my writing and maybe my quilting. I know it will make my cats happy to have me here.
This is a product in which we were able to help with the initial prototyping. With the tons of prototyping we do throughout the years, and most of them just ending up in the way back files to never be seen again, it’s always a joy to see them get this far!